This topic is for information and sharing exchanges between PSP and CBD patients.

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Postby Thelma Stockert » Mon Aug 30, 2010 11:54 am

Hello everyone.
My name is Thelma, and I was told I have CBD last month.
Have found almost no information and am unsure what to expect.
Thank you.
Thelma Stockert
Posts: 1
Joined: Wed Aug 25, 2010 7:32 pm

Postby Robin » Mon Aug 30, 2010 2:44 pm

Hi Thelma,

Sorry to hear about this diagnosis.

There's a "Guide for those Living with PSP and CBD" on psp.org.

You might want to join the CBGD_support Yahoo!Group. There are many more people with CBD and their carepartners on that online group. See:

Posts: 3843
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA


Postby mary carol » Wed Apr 04, 2012 3:24 pm

hi Thelma,

I am 59 and i was diagnosed in nov 2011, with cbgd , the only thing i know about it is the doctors are in a practice"practice" meaning they don't know it all , the best you can do is enjoy every day ,. think of this , if you went across a road and got hit by a mack truck, what then, no time to reflect and enjoy, statistics are against you but you and i are not normal are we, what is normal, if you have a loving husband, partner, child, friend, you are lucky.
i have a loving partner and child. i am not sure what will happen, i don't have a crystal ball, if i read what becomes of others i am screwed. well i refuse to be statistics. i am and will fight . ps excuse the typing not one of my strong points

good luck , fight for you

mary carol
Posts: 1
Joined: Mon Mar 26, 2012 2:30 pm

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