Sat, October 28, PSP/CBD Research Update + Family Conference

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Sat, October 28, PSP/CBD Research Update + Family Conference

Postby Robin » Thu Aug 03, 2017 6:49 pm

Save the Date! Saturday, October 28, PSP/CBD Research Update and Family Conference, Foster City (San Francisco Bay Area)

Brain Support Network is hosting a PSP/CBD Research Update and Family Conference, on Saturday, October 28, at the Crowne Plaza Foster City (San Francisco Bay Area). This is a conference for families coping with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD).

BSN's conference partner is Dr. Adam Boxer and the team at the UCSF Memory & Aging Center. UCSF is at the lead for PSP and CBD clinical trials, and important imaging research. We are lucky to have them in our backyard!

The conference will be run from about 9am to 5pm. The morning will feature international researchers in town for a major CurePSP conference on PSP, CBD, and tau. The afternoon will feature Bay Area clinicians (from UCSF and Stanford), healthcare professionals, and families.

Registration will open in early September. Join BSN's PSP or CBD email lists -- www.brainsupportnetwork.org/about-bsn/j ... mail-list/ -- and we’ll send you an update when registration opens. Alternatively, check back at BSN's website, brainsupportnetwork.org, in September to register. Our meeting facilities will accommodate 150 participants.

Stay tuned for more details!

Robin
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Re: Sat, October 28, PSP/CBD Research Update + Family Confer

Postby zymurgy » Wed Aug 09, 2017 4:53 pm

Robin, Will you have remote viewing available or post videos of the event for those of us who cannot attend? Seems like it should be an important event.
Thanks. Christine
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Re: Sat, October 28, PSP/CBD Research Update + Family Confer

Postby Robin » Wed Aug 09, 2017 6:41 pm

We are looking for a generous donor to fund the recording and/or live webcasting of the conference!
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Re: Sat, October 28, PSP/CBD Research Update + Family Confer

Postby Robin » Wed Sep 20, 2017 7:19 pm

Registration is now open!

Brain Support Network will host the:

PSP/CBD Research Update and Family Conference
Saturday, October 28, 2017
Crowne Plaza Foster City (San Francisco Bay Area)
8am Continental breakfast/check-in
9am Speakers begin
5pm Conclusion

Cost: $55 per person until October 7; $65 until October 27
No registration at the door
Tickets are non-refundable

Register now:

https://www.eventbrite.com/e/pspcbd-res ... 7146069895

This conference is for families coping with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD). Professionals and anyone in the community are also welcome to attend.

The conference will be run from 8am to 5pm. The morning will feature international researchers in town for a major conference on PSP, CBD, and tau. The afternoon will feature Bay Area clinicians (from UCSF and Stanford), healthcare professionals, and those on the PSP/CBD journey.

In recent days, several people have asked how this conference is different from the CurePSP research symposium on October 26-27. That CurePSP symposium is for international researchers. All of the talks at the CurePSP conference will be at a very high-level. (I don't know of any laypeople who can understand even 20% of those talks.)

It seemed like a great opportunity to me to ask those international researchers to stay in town through Saturday noon to give shorter and easier-to-understand talks to laypeople. That's what we've done! We've worked with CurePSP to know who was speaking at their conference.

Our main planning partner is Dr. Adam Boxer and the team at the UCSF Memory & Aging Center. UCSF is the lead institution for PSP and CBD clinical trials. We are lucky to have them in our backyard!

Space is limited so register now:

https://www.eventbrite.com/e/pspcbd-res ... 7146069895

If the $55 ticket is a hardship for you, we do have a small number of scholarships available. Please contact us (conference@brainsupportnetwork.org).

We are looking for sponsorship of livestreaming ($2K) or videorecording ($2K - though we already have one person who will pitch in $1K for this effort so we still need $1K) of the conference. Are you interested in sponsoring one or both of these? Contact us (conference@brainsupportnetwork.org).

We are also looking for specific all-day volunteers: (contact conference@brainsupportnetwork.org)

* digital photographer. (Requires someone with a digital camera, photography skills, interest in roaming around the ballroom and foyer the whole day, and good with people.)

* PC/AV helper to all presenters. (Requires someone with strong PowerPoint skills, strong PC and Mac skills, ability to assist each presenter get set up, and good with stressful situations.)

* journalist who can summarize the highlights of each talk.

Soon, we will be opening up registration for:
* exhibitors
* RNs, LVNs, LMFTs, and LCSWs who want CEUs
* guest speakers

Stay tuned.

Robin
robin.riddle@brainsupportnetwork.org
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Re: Sat, October 28, PSP/CBD Research Update + Family Confer

Postby Robin » Fri Oct 06, 2017 2:23 pm

We've posted the tentative agenda for the conference here:

https://www.brainsupportnetwork.org/age ... onference/

Early-bird registration ends tomorrow (Saturday 10/7). Register now here:

https://www.eventbrite.com/e/pspcbd-res ... 7146069895

Robin
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