Cause of death - a survey


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Postby eplowman » Sun Apr 06, 2008 5:50 pm

A typo: make its spelling "argyrophilic" (for those doing research).
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Postby StephanyKalil » Wed Apr 30, 2008 5:20 pm

1. a. Respiratory Failure
b. Supra Nuclear Palsy

2. Age 68

3. October 2000

4. symptoms 1991, 1994 (mis-diagnosis Parkinson's), 1997 PSP

5. Female

6. Hospice

7. Husband, then Assisted Living with private nurse, to full care facility, to Hospice.

8. Daughter

Optional item added 07/2007:

9. Brain was donated, report showed PSP.
Stephany
New Hampshire
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Postby Carolann » Tue May 06, 2008 7:55 am

1. Natural Causes
2. 65
3. April 29, 2008
4. Misdiagnosed in 2003 with Minor stroke, early 2004 with Parkinsons and correctly diagnosed in Spet 2004 with PSP
5. Male
6. Nursing home
7. Mother and then employees of the home
8. Daughter
Carolann M Torgerson
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Postby bonnie_b » Thu Jun 19, 2008 11:43 am

Verna Bergman

1. COPD- acute exacerbation, Progressive supranuclear palsy.
2. 69
3. May 18, 2008
4. November, 2005
5. Female
6. Hospital
7. Father and self
8. Daughter
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CAUSE OF DEATH

Postby Symon » Sat Jul 26, 2008 12:19 pm

1-CARDIORESPITORY FAILURE
A-PSP
B-FAILURE to THRIVE
68years
JUNE 18 2008
OCT. 2004
FEMALE
died at home ,hospice care
I WAS HER MAIN CAREGIVER and SPOUSE SYMON and LYNDA

PATHOLOGY REPORT PSP and GRAIN DISEASE
<GOODLUCK> WE ALL NEED IT. Be kinder than necessary.Cause every one you meet is fighting some kind of battle!
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Postby Robin » Sat Jul 26, 2008 1:05 pm

Symon,
Is this AGD - Argyrophilic Grain Disease?
Robin
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Postby eplowman » Sun Jul 27, 2008 5:42 pm

1. Cause of Death: PSP (death certif. as per hospice doctor)

2. Age at death: 77

3. Date of death: June 21, 2008

4. Year diagnosed: 1999 (symptom onset ~1997)

5. Male or female: Female

6. Place of death: home

7. Primary caregiver: 1999-2004 - spouse; 2004-2008 - aides 24/7

8. My relationship: spouse

9. Pathology diagnosis: (1) PSP (2) diffuse AGD
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP autopsy confirmed.
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Postby cats1424 » Tue Sep 23, 2008 10:20 pm

1. Cause or causes of death as listed on the death certificate? (Do NOT include "PSP" if that's not on the certificate.)
Death Certificate: Progressive Supranuclear Palsy

2. At what age did death occur? 64 years old

3. Date of death? Sept. 17, 2008

4. What year diagnosed with PSP (or date of first "misdiagnosis")?
First diagnosed: March, 2005

5. Male or female? Male

6. Place of death (home,hospital,nursing facility,hospice, other)?
Home

7. Primary caregiver (self, family member, non-family member)? Self

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? Spouse

Optional item added 07/2007:

9. If the brain was donated for research, pls indicate whether the subsequent pathology report found PSP and/or some other disease/disorder (pls name it). These findings will be of interest to the doctors reading this survey. (A small percentage of suspected PSP cases are found at autopsy to be something different, though symptomatically similar.)
The Neuropathology Report was rec'd on 11/20/08 and found:
1. Progressive Supranuclear Palsy
2. Inferior Olivary Hypertrophy
Last edited by cats1424 on Fri Nov 21, 2008 5:32 pm, edited 1 time in total.
Diana- Husband diagnosed March 28, 2005. Received his angel wings September 17, 2008 64 years old

Whether it's the best of times or the worst of times, it's the only time we've got.
Art Buchwald
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Postby gwynethj » Sun Sep 28, 2008 8:06 am

1. Double Pneumonia as a result of PSP

2. 80

3. February 14, 2005

4. 1995ish

5. Male

6. Hospital

7. Wife

8. Daughter

Thankfully, when dad was admitted into the hospital, we lucked out and had had a Dr. on staff who was familiar with PSP and actually had her own patients suffering from PSP. She was a tremendous help in our decision not to fight the double pneumonia.
In memory of my father, George, who passed away February 14, 2005. We all miss you so much.
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Cause of Death Survey

Postby Luise » Wed Oct 01, 2008 8:44 pm

1- ischemia / cadiopathy
2- age 73
3- died 9/22/08
4- Diagnosis confirmed 2007
5- Female
6- Died in Nursing Home
7- Nursing Home care, Private Duty Care and Daughter
8- Mother
a caring caregiver for my Mom for 7 years
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Postby jemma » Mon Oct 13, 2008 6:00 am

1. PSP on death certificate

2. Died - aged 58

3. Date of death - 17th September 08

4. Diagnosed 2004. No misdiagnoses.

5. Male

6. Place of death - hospice

7. Primary caregiver - wife

8. My relationship - daughter and secondary caregiver

9. Brain not donated
Jemma, Daughter of Dave (Symptoms from 2002. Diagnosed 2004. Died 17th September 2008 aged 58.)
"With all it's sham, drudgery and broken dreams...it is still a beautiful world" (Desiderata)
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Postby pnr » Tue Oct 14, 2008 11:09 pm

1. Respiratory failure, PSP

2. 71

3. 15/09/2008

4. Diagnosed as CBD in 2002 .Diagnosis changed to PSP in 2006

5. Male

6. At home

7. Self ,Nursing Agency

8. Daughter

S.Appathurai aged 71 years was one of the most active persons you would have ever met... brought to a stand still by this dreadful disease

Regards

Prabha
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Postby laurag » Tue Oct 21, 2008 10:55 am

1. Complications arising from PSP
2. 63
3. September 20, 2008
4. March 17, 2005 - we think symptoms started in 1996
5. Male
6. Nursing Home
7. Nursing staff at home
8. Daughter-in-law

Rest In Peace John.
Laura
John's daughter in law
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Postby Ale. » Thu Oct 23, 2008 5:09 am

1. Initial cause: PSP, terminal cause: cardiac arrest

2. 66

3. October 20, 2008

4. 2001 - first symptoms in 1999, misdiagnosed as depression after death of a few family members

5. Female

6. Home, never been in a nursing home

7. Husband, youngest son

8. Youngest son's fiancée
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Postby jefftop » Wed Oct 29, 2008 6:29 pm

1. Cause or causes of death as listed on the death certificate? (Do NOT include "PSP" if that's not on the certificate.)

1. PSP

2. 76

3. October 28, 2008

4. August 2005, but symptoms since 1998

5. Male

6. Home

7. Wife of 50 years

8. son
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Postby suzy » Thu Nov 13, 2008 11:14 pm

Hi Ed, I just read the sad histories and realized I posted in error. When I put "self" as caregiver, I meant myself - wife. I didn't see an "edit" place, so I can't change my posting. I wish I could have an "edit" for all those who died from the effects from PSP..

Diana/suzy
Hubby dx May 25, 2004 after 8 yrs. We have to educate the medical practitioners. Hubby died on July 8, 2007.
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Postby suzy » Sat Nov 15, 2008 10:56 pm

Hi Ed, I did find the "edit" tonight. I looked and looked last night and couldn't find it.

Thank you for your e-mail. Much appreciated.

I pray your health is better.

Diana/suzy
Hubby dx May 25, 2004 after 8 yrs. We have to educate the medical practitioners. Hubby died on July 8, 2007.
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Postby Crazy Mary » Wed Jan 21, 2009 3:36 am

1.progressive nuerological disorder,heart failure,and debility,not sure what that meant.


2.54

3.August 19,2008

4. symptoms around end of 1999-wrong diagnosis 2001 finally diagnosed 2003

5.Male

6.Home

7.primary care giver wife

8.Wife
wife of Bruce 54 years old diag.2003 symptoms since 2001. Freed of PSP on Aug. 19th 2008
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Postby jstritz » Sun Jan 25, 2009 3:53 pm

I, too, am amazed with the short years of life from diagnosis to death. My dad is in his 13th year of this horrible disease. I always knew he was one tough cookie!
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Survey for Paul Schrag

Postby Dot Dobbins » Wed Feb 18, 2009 6:09 pm

--------------------------------------------------------------------------------

1. Cause of Death: PSP (death certif. as per hospice doctor)

2. Age at death: 61

3. Date of death: November 6, 2008

4. Year diagnosed: 2005 (symptom onset ~2002, Parkinson mentioned, but not actually diagnosed in 2002, 2004 were told was "one of the rare neurological disease -since have discovered, all of these are bad)

5. Male or female: Male

6. Place of death: home, with hospice care there

7. Primary caregiver: adult day care for 2 days a week, in 2005 -2006 and and stayed by self some with spouse on weekends and evening, care givers weekdays, spouse evenings and weekends, with help of daughter and other friends on occasion from 2006-death)

8. My relationship: spouse

9. Pathology diagnosis from Mayo Clinic Brain Bank: PSP
Dot D, husband of 30 years, Paul Schrag, age 61, PwPSP, symptoms since 2002, diagnosed 5-31-05, died 11-6-08
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Postby 1387maris » Thu Feb 19, 2009 12:25 pm

1.PSP

2. 72

3. 29 Jan 2009

4. 2004

5. Female

6. Home

7.Non-family member

8. Daughter
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Postby Lydarose » Fri Apr 24, 2009 1:26 pm

1. Cause or causes of death as listed on the death certificate? Progressive Supranuclear Palsy
2. At what age did death occur? 74

3. Date of death? 3-24-09

4. What year diagnosed with PSP (or date of first "misdiagnosis")? 2008

5. Male or female? Female

6. Place of death (home,hospital,nursing facility,hospice, other)? Home

7. Primary caregiver (self, family member, non-family member)? Self

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? Daughter
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Postby scoutmomof2 » Sun May 31, 2009 3:25 pm

1. Respiratory Failure due to Progressive Supranuclear Palsy

2. 59

3.May 22, 2009

4. July 2008

5. Male

6. Home

7. Family

8. Daughter
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Postby janet@metamorphiz.co.uk » Wed Jun 03, 2009 9:22 pm

1. PSP

2. 74

3.6/5/2009

4. 2009

5. Male

6. Hospice

7. Wife

8. Daughter

Optional item added 07/2007:

9. Unfortunately the Brain Bank in London was unable to admit my father's brain, there was concern that he may also have had an infectious disease as his illness was only over a four month period. So although the death certificate stated it was PSP we will never know for sure.
Janet, Daughter of Alan - change in gait and self confidence in October 2008, big fall and head injury Dec 2008, diagnose Jan 2009, died May 2009. Now resting in peace. Death certificate states PSP, but had an unusual rapid decline.
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my Dad

Postby buffle » Mon Jun 22, 2009 3:34 pm

1. Cause or causes of death as listed on the death certificate? Progressive Supranuclear Palsy / Atrial Fibrillation on death certificate; He was hospitalized for atrial fibrillation 6/11 and was found to have high heart rate (~170), high sodium levels, and slight infection. On 6/12 he refused antibiotics and IV fluids. He eventually succombed to a coma on 6/15 and died on 6/16. It probably had more to do with the high sodium levels that were not treated than his heart rate (according to a talk I had with his cardiologist). We respected his wishes regarding treatment.

2. At what age did death occur? 69

3. Date of death? 6-16-09

4. What year diagnosed with PSP (or date of first "misdiagnosis")? misdiagnosed as Parkinson's in 2002; PSP diagnosis in 2006

5. Male or female? Male

6. Place of death (home,hospital,nursing facility,hospice, other)? hospital

7. Primary caregiver (self, family member, non-family member)? nursing home for last 2 months; family before that

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? Daughter
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Postby JudyT » Thu Aug 20, 2009 4:22 pm

1. Cause or causes of death as listed on the death certificate? CARDIO RESPITORY ANGST - HEART DISEASE

2. At what age did death occur? 83

3. Date of death? 3/11/09

4. What year diagnosed with PSP (or date of first "misdiagnosis")? 1998

5. Male or female? MALE

6. Place of death (home,hospital,nursing facility,hospice, other)? NURSING HOME

7. Primary caregiver (self, family member, non-family member)? NUSRING HOME STAFF AND SPOUSE

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? DAUGHTER

9. If the brain was donated for research, pls indicate whether the subsequent pathology report found PSP - BRAIN DONATED TO UNIV. OF PENNSYLVANIA - PSP CONFIRMED
[/b]
Judy T. - Dad with PSP (Born 11/21/25 - Died 3/11/2009, Dx'd 1998)
For I know the plans I have for you, declares the Lord, plans to prosper and not to harm you, plans to give you hope and a future. Jer 29:11
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Postby Crystal » Sat Aug 29, 2009 2:28 pm

1. PSP

2.71 :b'day 10/05

3. August 14th 2009 6am

4. misdx: 9/04 (NPH) PSPdx: 5/07

5. Female

6. end of life private facility

7. husband

8. daughter :(
Last edited by Crystal on Sun Aug 30, 2009 3:02 pm, edited 1 time in total.
Crystal....daughter and caregiver of Pat born October 5th 1937. 1st dx. NPH 2004 finally dx. in 5/07 with PSP. symtpoms from 1999. Mom's journey ended 8/14/2009. Here to help where I can.
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Postby Robin » Sat Aug 29, 2009 4:12 pm

Crystal,
My condolences on the passing of your mother.
Robin
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Mom

Postby HisWorshipGirl » Thu Sep 03, 2009 12:20 am

1. Cause or causes of death as listed on the death certificate? PSP

2. At what age did death occur? 75

3. Date of death? 8/20/09

4. What year diagnosed with PSP (or date of first "misdiagnosis")? 2004 NPH then PSP shortly thereafter

5. Male or female? FEMALE

6. Place of death (home,hospital,nursing facility,hospice, other)? NURSING HOME

7. Primary caregiver (self, family member, non-family member)? NUSRING HOME STAFF AND HUSBAND

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? DAUGHTER :cry:
Heidi
Mom is with Jesus!
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Postby Robin » Thu Sep 03, 2009 12:40 am

Heidi,
Our condolences on your mother's passing.
Robin
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Postby MaryCan » Tue Nov 03, 2009 3:54 pm

1. Cause or causes of death as listed on the death certificate? CARDIOPULMONARY ARREST

2. At what age did death occur? 92, ALMOST 93

3. Date of death? 9/2/2009

4. What year diagnosed with PSP (or date of first "misdiagnosis")? 2008, DOCTOR SAID PSP AFTER ONLY 10 MINUTES EXAM. HE WAS RIGHT.

5. Male or female? FEMALE

6. Place of death (home,hospital,nursing facility,hospice, other)? HOSPITAL ER, 5 MINUTES AFTER ARRIVAL FROM NURSING HOME

7. Primary caregiver (self, family member, non-family member)? I WAS PRIMARY CAREGIVER 2 YEARS, UNTIL 9/2008 WHEN SHE WENT INTO NURSING HOME

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)? DAUGHTER

9. If the brain was donated for research, pls indicate whether the subsequent pathology report found PSP - BRAIN DONATED TO MAYO JAX - PSP CONFIRMED
MaryCan, daughter of Elizabeth McGee, diagnosed July 2008, received her wings September 2009, a month before her 93rd birthday
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Postby JillGat » Wed Dec 02, 2009 12:18 am

1. Aspiration pneumonia

2. 74

3. May 15, 2001

4. Diagnosed with "dystonia" by geriatric neurologist in 2000. I diagnosed her with PSP, but the docs didn't agree.

5. Female

6. Nursing home

7. Me (daughter) and then nursing home

8. Daughter

9.Donated brain; Subsequent pathology report found atrophy and other pathology consistent with PSP
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Postby dani.borchardt » Sun May 09, 2010 3:45 pm

1. Cause or causes of death as listed on the death certificate? (Do NOT include "PSP" if that's not on the certificate.)

PSP, multiple organ failure[/b]


2. At what age did death occur?

59

3. Date of death?

08/05/2010

4. What year diagnosed with PSP (or date of first "misdiagnosis")?

2006, but he had the symptoms since 2003

5. Male or female?

male

6. Place of death (home,hospital,nursing facility,hospice, other)?

home

7. Primary caregiver (self, family member, non-family member)?

family member


8. Your relationship to the deceased (spouse, daughter, son, relative, friend)?

daughter

Here in Brazil we don't have this research. Infortunately


[/b]
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Cause of death...a survey

Postby Helenn » Thu Jun 10, 2010 1:07 pm

1. PSP (Mayo, Jacksonville, Florida confirmed)
2. Death at 75 years
3. Death Date: 3 March, 2010
4. Diagnosed @ Mayo, AZ ; NY Long Island Jewish Hospital & CNI 2005
5. Deceased was Male
6. Place of death: Home
7. Primary caregiver: spouse
8. Relationship: spouse
9. Brain donated to Jacksonville, Florida...diagnosis of PSP confirmed
Wife of Joe who was diagnosed 2005 at the
Mayo Clinic in AZ--symptoms in 2004--left us on March 3, 2010 at home. His memory lives on.
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Postby Robin » Thu Jun 10, 2010 1:29 pm

Helenn,
Thanks again for donating your husband's brain. This will help us all! And thanks for your kind assistance on the phone recently.
Robin
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Postby aurie » Sun Jun 13, 2010 6:26 am

1. Primary:Pulmonary and cardiac arrest, intracranial bleeding after fall. Secondary: PSP

2. 74

3. 6/6/10

4. symptoms in 2004, misdiagnosed with PD, diagnosed with PSP in 2008

5. Male

6. Died in hospice after a week in the hospital. He was home before that.

7. His beloved wife of 48 years

8. Daughter-in-law
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Postby Bridget » Mon Jul 19, 2010 10:06 am

1. Cause of Death Certificate: PSP
2. Age - 71
3. June 18, 2010
4. Diagnosed: 2001
5. Male
6. Place of death: Home
7. Cared for by: Caregivers at home; family
8. Daughter
9. Brain Autopsy Diagnosis: PSP w/AgD (agryrophilic grain disease)
Bridget
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Postby Robin » Mon Jul 19, 2010 10:23 am

Bridget,
Thanks again to your father for donating his brain for PSP research, and to you and your family for making this happen. As you may know, Ed's wife Rose had the same two diagnoses -- PSP and AgD.
Robin
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Cause of Death--a Survey

Postby dorothy p. wallace » Fri Jul 30, 2010 10:48 pm

1. PSP, Inanition (weakness caused by not eating)
2. 75
3. July 19, 2010
4. Misdiagnosed with Parkinson's 2004, PSP diagnosis: 2006
5. Male
6. Home
7. Wife and Son
8. Wife
9. Neuropathology Diagnosis: 1. PSP, 2. Senile changes of Alzheimer type (Braak Stage 0-1), 3. Arteriosclerotic Vascular Disease, 4. Transneuronal Degeneration, lateral geniculate nucleus.
Dottie

My husband of 54 yrs, Roy, b. 1934,, Symptoms since 2004, diagnosed May, 2006, d July 19, 2010
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Longevity

Postby Pauline in Maine » Mon Aug 30, 2010 12:15 am

Have been away from this site for quite a long time. I am amazed to see how many people have survived with PSP into their 70's. My Greg died just a couple months after turning 64. Are people getting the disease later in life or surviving longer?
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Postby Nelli » Mon Sep 06, 2010 3:50 pm

1. Not sure because I haven't seen the death certificate. Probably just PSP. I don't even think they did an autopsy which i'm very suprised about - I thought they have to conduct an autopsy after death to patients that have been diagnosed only by symptoms...

2. Dad was 57 y/o.

3. Dad died on 8th June 2010.

4. Dad was diagnosed in November of 2007 with symptoms about 1-2yrs prior diagnosis.

5. Male.

6. Hospital, admitted 7 days before passing due to possible pneumonia. Before that he was cared for at home.

7. Primary caregiver was his wife, I took care of dad 4h/day and he had another caregiver the other 4h when my mom worked.

8. Daughter
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Postby Tracey Noel » Fri Oct 29, 2010 7:27 pm

Cause of death as on certificate - Progressive Supranuclear Palsy

Age 82

D.O.D. 10/01/10

Diagnosed 10/07

Male

Home

Wife, Daughter, Granddaughters, Sons-in-law

Brain autopsy, N/A at this time
Dad diagnosed October 2007. Showing symptoms since 2003. d. 10/01/10 He always wore a smile! LIVE ~ LAUGH ~ LOVE
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Postby neurobadger » Fri Apr 29, 2011 8:45 am

1. Cause or causes of death as listed on the death certificate? (Do NOT include "PSP" if that's not on the certificate.)

Suicide (note: not sure of what was listed on the death certificate, but he killed himself)

2. At what age did death occur?

79

3. Date of death?

April 29, 2011

4. What year diagnosed with PSP (or date of first "misdiagnosis")?

2010

5. Male or female?

Male

6. Place of death (home,hospital,nursing facility,hospice, other)?

Home

7. Primary caregiver (self, family member, non-family member)?

Family member

8. Your relationship to the deceased (spouse, daughter, son, relative, friend)?

Relative
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Postby Robin » Fri Apr 29, 2011 10:30 am

neurobadger,
My condolences to you and other family members on this tragic loss. Someone with a clinical diagnosis of PSP in our local area killed himself about a year ago; it was intended to be a double-suicide but the wife did not die. It was terrible for their daughter (a member of our local support group). If it would help you (or one of this man's children) to speak with her, please email me privately.
Robin
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Postby starcat81 » Wed Nov 09, 2011 2:57 am

1. Do not have death certificate as she just passed tonight but I'll be sure to update.
2. 59
3. 8 November 2011
4. 2008
5. Female
6. Home
7. Myself and my aunt (her sister). Hospice was also involved over the past month.
8. Mother
Samantha

"As breathing is my life, to stop I dare not dare."
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Cause of Death Survey

Postby doreen » Thu Nov 10, 2011 5:27 pm

1. (1) Respiratory Failure, (2) PSP
2. 69
3. Sept 2, 20011
4. Parkinson's--March 2008, PSP Oct 2008, some symptoms noticed in 2006.
5. Male
6. Home
7. Wife
8. Wife
9. Brain was donated but the report is not back yet, will update when the report is available.
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Judy D. Jordan

Postby ajordan142 » Sat Dec 10, 2011 7:15 pm

1. PSP
2. 73
3. DEC.2,2011
4. Essential Tremor Sept 2008; PSP June 2009
5. Female
6. Home
7. Wife
8. Wife
9. Began paperwork, however she died next day, Vanderbilt was selected but there just wasn't enough time for processing.
aj
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Postby Robin » Sat Dec 10, 2011 10:27 pm

AJ,
Sorry to read about the loss of your loved one Judy.
Robin
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Postby toddrfitz » Mon Dec 12, 2011 5:20 pm

1. PSP

2. 67

3. 12/3/11

4. first symptoms 2005, misdiagnosed with Parkinsons 2007, rediagnosed PSP 2008

5. Male

6. Assisted Living Facility

7. Assisted Living Staff and Myself

8. Son
toddrfitz
 
Posts: 36
Joined: Tue May 18, 2010 12:19 pm
Location: Bay Area, CA

Re: Cause of death - a survey

Postby Tio » Fri Jan 13, 2012 11:32 am

1. Artheriosclerotic Heart Disease
2. 86
3. December 2011
4. 2008
5. F
6. nursing facility
7. Staff, assistants and family
8. Son
Tio
 
Posts: 1
Joined: Sun Jul 18, 2010 3:00 pm

Re: Cause of death - a survey

Postby dllera » Mon Jan 30, 2012 1:17 pm

1. Progressive Supranuclear Palsy
2. 71
3. January 23, 2012
4. Symptoms since 2002 -many misdiagnosis -PSP diagnosed 2006
5. Male
6. Home
7. Daughter and staff of CNA caregivers
8. Daughter
Dani
Dad has PSP symp:2002 dx:2006
dllera
 
Posts: 70
Joined: Mon Sep 20, 2010 3:43 pm
Location: Seattle

Re: Cause of death - a survey

Postby JimH » Mon Apr 16, 2012 7:52 am

1. Cause of Death: PSP (death certif.)

2. Age at death: 82 yrs, 11 mo.

3. Date of death: January 25, 2012

4. Year diagnosed: 2004 (symptom onset ~2001)

5. Male or female: Male

6. Place of death: SNF

7. Primary caregiver: 2001-2007 - spouse; 2007-2012 - SNF

8. My relationship: son

9. Pathology diagnosis: (1) PSP (2) AGD (3) PARENCHYMATOUS CEREBELLAR DEGENERATION
My father, Pastor EH, symptoms since 2001, diagnosed 2004. His spirit returned to God who gave it 1-25-2012, age 82 yrs, 11 mo.
JimH
 
Posts: 11
Joined: Sun Feb 24, 2008 9:23 am
Location: Bartlett Illinois

Re: Cause of death - a survey

Postby Mirima » Wed Apr 18, 2012 1:43 pm

Cause of death - a survey


1. Progressive Supranuclear Palsy

2. 66

3. 12/03/11

4. 2004

5. Male

6. Home

7. Me

8. Wife

9. Autopsy confirmed PSP
Husband showing signs 2005, diagnosed PSP 2007, left PSP behind on December 3, 2011.
Mirima
 
Posts: 9
Joined: Sun Sep 18, 2011 7:45 pm
Location: Oregon

Re: Cause of death - a survey

Postby Robin » Wed Apr 18, 2012 2:20 pm

JimH and Mirima,
Thank you again for donating the brain of your loved one -- Jim's father and Mirima's husband. It's wonderful that their tissue is now part of the ongoing PSP research effort.
Robin
Robin
 
Posts: 3584
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Cause of death - a survey

Postby carole » Wed May 02, 2012 11:08 pm

1. PSP
2.66
3.10/31/11 10pm
4. April 2004
5. Male
6. Home with hospice nurse (had been in I.C.U. for 4 weeks came home (by ambulance )for 2hours: went to God
( acute respiratory distress Home with 24 hr. Bi-Pap machine
7. For several years in home 24 hr care.( 7 caregivers )
8. wife
carole
 
Posts: 39
Joined: Thu Aug 31, 2006 8:04 pm
Location: Crestline, California

Re: Cause of death - a survey

Postby Robin » Thu May 03, 2012 1:10 am

Carole,
Again, I'm sorry for your loss. How fortunate your husband was to die at home. This happens for so few of us!
Robin
Robin
 
Posts: 3584
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Cause of death - a survey

Postby KDupree » Sun Oct 06, 2013 6:39 pm

1. Progressive Supranuclear Palsy
2. Age 58
3. 08/18/2013
4. PSP Diagnosis March 2010/ Misdiagnosed August 2009 (dementia of the Alzheimers type)
5. Male
6. Home with his wife, daughter, son, mom and friends at bedside; hospice care in the home for last 9 mths; for his last 3 days hospice stayed with us 24/7
7. Wife with family, friends, and paid CNAs when needed; he required 24/7 care for over 2 yrs
8. Wife of 40 yrs
9. Brain donated to Mayo, Jacksonville- waiting on results from pathology report
Husband 40 yrs, Tim, b.1955 diagnosed w/PSP in 3/2010; symptoms slurred speech/vision problems early 2009; misdiagnosis dementia of Alzheimer's type 2009; Homegoing age 58 on 08/18/2013. Pathology report-Mayo, Jacksonville-confirmed CBD not PSP.
KDupree
 
Posts: 18
Joined: Fri Oct 28, 2011 7:32 am

Re: Cause of death - a survey

Postby helendove » Sun Mar 30, 2014 7:34 pm

1. PSP
2. 74

3. 7/31/2013

4. 5/2008

5. Male

6. Home

7. caretakers were non-family members

8. daughter

9. brain was not donated
helendove
 
Posts: 2
Joined: Fri Apr 05, 2013 8:40 am

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